We Are Due Change!

sneezemedizzy.com 1 Minute

Oh, my! It has been a long time, a very long time since I felt this sense of accomplishment. I am one of many Vestibular patients that were misdiagnosed and in being told we have one diagnosis when it’s actually something else. So many of us are told the same thing, “It would seem you have Labyrinthitis. It will be over in one month…”. WE know better, we who have been forced to do our own research, and in doing so, we know there are at least 20+ Vestibular Disorders. Why don’t our doctors know this? There is such a lacking in how our doctors are educated. I’m talking worldwide people!

So, through my involvement with VEDA, I have met some amazing, inspiring, and knowledgeable people. I’ve met other awesome people through the Facebook Support Groups and my blog (all in virtual reality!), as we are from all over the world. This past week, I was asked to help write a petition to the World Health Organization (WHO). We worked for days, going back and forth, all over the world. I find this so wonderful, connecting with passionate, like-minded individuals who want, I mean demand, accurate diagnosis for Vestibular Disorders. I could easily go on and on about this, but I want to just share the link to the Change.org to read our petition. We did not write this just for us, we wrote it for YOU! You deserve an accurate diagnosis, we all do!

https://www.change.org/p/world-health-organization-who-vestibular-patients-for-smarter-doctors-and-better-patient-care

I hope each and every one of you, I mean you my wonderful, beautiful readers in the:

  • USA
  • United Kingdom
  • Canada
  • Australia
  • Ireland
  • Netherlands
  • Belgium
  • Greece
  • Italy
  • Brazil
  • Poland
  • Germany
  • India
  • Singapore
  • Argentina
  • France
  • Bangladesh
  • Croatia
  • Spain
  • Barbados
  • Malaysia
  • Romania
  • Oman
  • Mexico
  • Venezuela
  • South Africa
  • Philippines
  • Dominican Republic
  • New Zealand
  • Finland
  • Ecuador
  • Albania
  • Norway
  • Trinidad & Tobago
  • Peru
  • Denmark

Will you please read the petition and SIGN it today, then ask one friend, one family member, and so on to do the same. This could be HUGE!

vestibular.org

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Published by mdma74

I've lived a life of chronic dizziness since 2002. I was an employed, successful, respected C.O.T.A. with a 12 year career as a Pediatric Specialist. I loved my work, I actually looked forward to it each day. I was exposed to a virus while working and by the end of that day, I was running fever. I was treated by my GP first (a virus...duh!) I at least got anti-nausea medicine, then a referral to an ENT. Sound familiar? One and one half YEARS later, I was finally diagnosed. Labrynitits/Vestibular Neuritis which left a lesion or scar on my 8th Cranial Nerve. That's our 'balance nerve', how lucky was that? So, after a long bout Depression, I decided the 'telling' of my dizzy journey would be a good thing. It's very tongue-in-cheek for the most part. While I do go into some very dark times while talking about the cause of my PTSD. I write this blog, for the most part, hoping to help anyone living/dealing with Vestibular Disorders (you would be surprised how many different ones there are!). I am an Ambassador for VeDA (NOT a typo), the Vestibular Disorders Association, a Grassroots group that has the most extensive resources out there in cyberspace. Google, Siri, any of them... All roads (links) lead to VeDA! vestibular.org

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2 thoughts on “We Are Due Change!”

    1. Wow! Thanks so much for doing so! I’m feeling a purpose again! That is a foreign concept 🙄…we, the patients will make it happen! Thanks so much Sara, it means so very much to me!

      Liked by 1 person

      Reply

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